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Learning to Change Conference.IV Mon 11 Oct 10 -2.0Castle Green Hotel in Kendal

Started by jol, September 13, 2010, 03:13:23 PM

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Dear Parent/Carer

We are writing to you as you have either previously attended or expressed an interest in attending a previous Learning to Change Conference.

(apologies if you have already received this information from another source)

The fourth conference will be taking place on Monday 11th October 2010 from 10.00 a.m. to 2.00 p.m. (refreshments and registration from 9.30 a.m.) at the

Castle Green Hotel in Kendal. 

A flyer with more information is attached.

If you would like to book your place, please send us an email with the following details:

Your Name (s)
Age of chld with disability/special need
Which locality you are in (Carlisle, Eden, Furness, South Lakes or West)
Any dietary requirements you may have
Whether you need help with transport
Whether you need travel/childcare expenses
Do you need a map/directions to the venue

Places will be allocated on a first come, first served basis so if you would like to attend, please let us know as soon as possible.

Regards <<...>>

Sarah Lewis - Regional Information Officer
E-mail: northeast.office@cafamily.org.uk
Direct Line: 0191 213 6300
Contact a Family - <http://www.cafamily.org.uk>http://www.cafamily.org.uk
For families with disabled children
National Freephone Helpline 0808 808 3555 (UK only) Open 9.30 am - 5pm Monday to Friday
Textphone 0808 808 3556
Email: helpline@cafamily.org.uk
Minicom 020 7608 8702
General e-mail: info@cafamily.org.uk

Contact a Family North East
The Dene Centre
Castle Farm Road
Newcastle upon Tyne NE3 1PH
Tel/Fax: 0191 213 6300

Are you looking for a challenge? Contact a Family offers a range of exciting sponsored events - Marathons, 5K and 10K runs, parachute jumps and overseas treks. Interested? For more information, visit <file://www.cafamily.org.uk>www.cafamily.org.uk call 020 7608 8731 or email fr.team@cafamily.org.uk

This is a great way to have fun AND help us to support families with disabled children!


hi sarah,

thx for the email
hopefully both val and i should be able to attend

we wonder though whether anyone from the PCT will be attending and whether they would be able to tell us how their allocation has been spent, and if funding continues, what future plans they have .

we understand their funding is not ring fenced but believe there is a requirement for some sort of audit?

also we would still like to know what provision is being made for "emergency respite"

as the facilities at present cannot accommodate children with physical disabilities or more complex medical needs

we want to know what would happen if a family with a child with, for example, cerebral palsy, epilespy and a gastrostomy/feeding tube  phoned SLDC social services saying they were at breaking point and could not look after their child any longer.  Or, if such a family had an emergency, eg the principle carer was suddenly taken into hospital, or had to be away from the family home for a time?

we wonder why a part of the PCT / aiming high funding cannot be set aside for a reciprocal respite arrangement with ajoining counties, who have the appropriate residential facilities and, who might have availability...

Many thanks

val and jol