Short Break Tracking
EDCM undertook a three year research project looking at parents experiences of local short break services between 2008 and 2011. This was a period of service transformation as funding was made avaliable for short break services through the Aiming High for Disabled Children programme.http://www.edcm.org.uk/campaigns-and-policy/short-breaks/short-break-tracking.aspx
EDCM wrote three reports outlining the findings of its research:
Raised Expectations: Parental experiences of short breaks
This report published in October 2011 is the final report in EDCM's three year research programme which charted parents experiences of short breaks throughout the Aiming High for Disabled Children programme.
Download the full report here
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no going backNo going back! Parents' expectations of short breaks
This report published in July 2010 is the second of three annual reports charting parents' experiences of short breaks over the course of the Aiming High for Disabled Children programme.
Download the full report here
short break trackingShort Breaks Tracking Interim Report
A report published in April 2009 which highlights the interim findings from an EDCM research project evaluating the impact of the Aiming High for Disabled Children short breaks programme on the lives of disabled children and their families.
Download the report here
ok so i see now the new central government requirements and current buzzwords/phrases...
In 2006 a series of Parliamentary hearings took place which assessed the services for disabled children. In these hearings parents told parliamentarians that 'the lack of short breaks was the biggest single cause of unhappiness with service provision'.
Short breaks provide opportunities for disabled children and young people to spend time away from their primary carers. These include day, evening, overnight or weekend activities and take place in the child's own home, the home of an approved carer, a residential or community setting.
Short break funding
Over the past few years we have seen unprecedented amounts of funding going into funding short breaks. This included a pledge of £800million to be delivered between 2011/12 and 2014/15 through the Early Intervention Grant. This followed the success of the Aiming High for Disabled Children programme. Find out more about funding for short break services
Short breaks and the law
In January 2011 Parliament passed regulations that put a duty on local authorities to provide short breaks services in their local area. This is known as the 'Short Break Duty' and came into effect on 1 April 2011. One of the requirements on local authorities under this duty is to produce a short break services statement with details of local short break provision. Find out more about the Short Break Duty and EDCM's work monitoring its impact.
EDCM's research on short breaks
Between 2008 - 2011 EDCM undertook a research project evaluating the impact of the Aiming High for Disabled Children short breaks programme on the lives of disabled children and their families. EDCM produced annual reports on its findings. Find out more and read the reports above.
Why short breaks and not respite?
The literal definition of 'respite' is 'the laying down of a burden' or a 'temporary cessation of something that it tiring or painful'. This language is not positive. The term 'respite' reinforces the view that disabled children are passive recipients who have things done to them, rather than active citizens with lives to live. EDCM believe that the wider transformation for services for disabled children must be cultural, not just financial.
The language of disability has rightly changed over the years, and the term 'short breaks' is part of that process. The crucial difference in short breaks is that both the parent and the child get a break that suits their individual needs. As we move towards transformation, the child's break is valid and valued by all.